European Multiple Sclerosis Platform

Communication and dissemination, patient and stakeholder engagement

Brussels, Belgium

Posted on May 11, 2024  •  3 minutes  • 469 words

Contribution to the project:

EMSP is leading on the Communication and Dissemination Work Package to ensure that complex research notions that the research consortium partners are leading on is translated in a user-friendly, more accessible manner to provide updates to people with MS, their caregivers and patient organisations. This will include, but not limited to, leading on the development of communication material such brochures and videos with project updates, updating content on the project’s website and social media platforms dedicated to people with MS, and organisation of livestreamed discussions to bring in together people with MS and researchers and healthcare professionals. EMSP will also support consortium partners to know more on effective engagement of people with MS, this way this practice becomes more common among researchers. In other work packages, EMSP will share the relevant, unique sections of this research with its member organisations to further disseminate the reach of the research to interested people with MS.

Team Members:

The main focal point of the project within the EMSP team is Patricia Moghames, Programme Coordinator at EMSP. Patricia will involve EMSP colleagues as needed, especially regarding strategic direction, communication, dissemination, patient engagement, and advocacy.

Patricia Moghames

Patricia Moghames joined EMSP in 2022 as a Programme Coordinator. She holds an MSc. in Nutrition from the American University of Beirut. Patricia brings with her 12 years of experience in managing research, patient engagement, and community health projects. Before joining EMSP, she worked in both academic and humanitarian contexts, focusing on nutrition, maternal and child health, malnutrition as well as mental health and resilience. Throughout different projects and institutions, Patricia worked closely with vulnerable communities, refugees, and patients, aiming to improve their quality of life and access health services.

Elisabeth Kasilingam

Elisabeth Kasilingam is currently serving as the Chief Executive Officer of the European Multiple Sclerosis Platform (EMSP) and as Vice-President of the European Patients’ Forum. In these roles, she is highly committed to working towards better quality of life of patients with MS and other chronic conditions by the implementation of successful, results-oriented projects and policy campaigns and actions. Elisabeth entered the European political arena more than 15 years ago, pursuing her interests in the field of human rights and specialising in the health and social sectors.

In her work with EMSP, Elisabeth has been developing capacity-building programmes to support the further development of national MS patient organisations and health and social advocacy campaigns, as well as engagement activities to develop young patient advocates

Emma Rogan

Emma Rogan joined EMSP in 2014 and works as a Campaigns and External Engagement Coordinator. She has degrees in communications, equality and social justice. Previously, Emma has worked in the MS Society of Ireland, multinational companies and small businesses. Also, as a social entrepreneur, she has developed innovative support solutions for young people with MS.